Ben Porter is the Patient and Public Involvement and Engagement (PPIE) Manager for ourselves, the NIHR Newcastle Biomedical Research Centre (BRC) and the NIHR Newcastle Clinical Research Facility (CRF).
For the NIHR Newcastle MIC, he is responsible for the strategic direction of PPIE activities and innovating the way these are carried out, in order to ensure our research meets the new UK Standards for Public Involvement.
He supports and delivers a range of PPIE activities, including helping patients and the public shape what and how research is delivered, and the work of our insight panel for patients, public and carers.
Ben has six years of public health experience, having worked in analytical and research project management roles in the NHS and at Newcastle University. Through these roles, he has developed strong relationships with many stakeholders both nationally and internationally, including patients, patient organisations, research organisations, industry and healthcare professionals.
He also has a strong understanding of the research lifecycle, clinical trial pathway and the needs of patients with rare diseases in the UK in his previous role as the UK Myotonic Dystrophy and FSHD Patient Registries Project Manager and Curator.